Living with Epilepsy…..

My son has Epilepsy. This is not the sum of all parts that make him as a person, but it is a huge factor in his life. He grew up healthy and happy, but he suffered a head trauma 10 years ago when he was a trainee Guard at 19 years of age. He banged his baby soft skull against a concrete wall when playing a joke on a colleague which resulted in a major seizure within 24 hours. The precious safety cap that surrounded his brain was chipped and damaged that day and can never be repaired.
 
This major brain injury has impacted in so many ways on my family that can often be inarticulate and without expression, but it has affected my darling son in ways that I am sometimes emotionally inept at dealing with.
 
He has had much more to deal with than I have.
 
His promising career with the Irish Police Force ended when another seizure occurred almost twelve months later. The Guards ‘let him go’. Epilepsy is a condition that prohibits so many life and career choices, and being a member of the police force was one of them.
 
He took all of this in his stride, and despite the desperate fallout, he took a side wards step to fulfill his ambition of working with marginalised youths and went to college and is now doing all that he ever wanted to do. He works full time with disadvantaged and vulnerable young people and he is dedicated to his profession and is well loved and respected by his peers. He is also a volunteer in the local football club and gives so much of his free time in the endless pursuit of community building through sport with young people.
 
He is on prescribed epilepsy medication for life and it keeps him safe (most of the time) but he has had infrequent seizures since.
He is my precious child and I adore him.
 

I admire his refusal to be categorised by his Epilepsy although the mammy in me wants to protect him and keep him in bubble wrap.
I admire his dedication in trying to make life better for other people, but I get frustrated when he puts his own health on the back burner and doesn’t place himself first.
I admire the way that he will not let this condition rule his life as he gets on with it.

But….

I wish I could wave a magic wand and go back to that day and put a pillow on that concrete wall.
I wish that he didn’t have to hide this terrible stigma that he carries 24/7
I wish that Epilepsy was understood and talked about more.
I love him for all the parts that he is and I wish that life didn’t deal him such a shitty hand of cards.

Destiny is not all that and a bag o’ chips sometimes…..

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2 responses to “Living with Epilepsy…..

  1. Thanks for your lovely comments Karen and yes, being a parent is not always a bed of roses x

    Like

  2. love the way you write with such honesty and feeling about things that we sometimes findn difficult to put into words. It is only since becoming a parent myself that I can even begin to understand the emotion and love behind my own parents actions x

    Like

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