Category Archives: Hospitals

At the end of the day………

It’s such a commonly used expression –

Irish people use it all the time. We throw it around casually in conversations….. “At the end of the day she was acting the maggot and I will NEVER be friends with her again”… “At the end of the day the score was even and the ref was SOOOO right”. “At the end of the day he was such a fecker that I dumped him”.

“At the end of the day” is a colloquialism- a part of the popular Irish vernacular, and although a lot of people use it frequently in conversation, I don’t honestly believe that we think too much about what lies behind the words that we are saying.

Circumstances have a way of making you sit up and take notice of what was once ordinary become extraordinary…….

At the end of the day on Wednesday I learnt that my mother’s terminal cancer had spread to other organs in her body…

At the end of the day I realised that her treatment had not halted this terrible disease despite medical interventions and chemotherapy….

At the end of the day I was alone with her as we were told that the results of her recent scans did not herald good news…..

At the end of the day we were sitting together quietly in a hospital room hearing words that extinguished all hope….

At the end of the day I was sitting with my mother the moment that we realised that the actual end of the day was coming sooner than we thought….

 

I am currently confused about the meaning of Destiny…..

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Care and kindness in unexpected places

According to all the current reports in the newspaper and on the TV, our Irish National Health Service is in shambles. There are stories featured almost every day about the heartbreak and suffering that vulnerable people have to endure at a time when they need care the most. There seems to be little praise for the services and for every bad story that is heard, there are another five waiting in the wings for their day in the spotlight.

I realise that no newspaper ever refused ink, and that good news rarely makes the front page, but I am heartened by my own recent experience with the Health Service and particularly with St James Hospital in Dublin where my mother is currently a patient.

I brought my mam (who is also terminally ill) to the A & E department of James Street hospital in Dublin late on Monday night June 18th on the advice of her GP. Her condition didn’t appear to relate to her current illness, but her GP quite rightly didn’t want to take any chances. From the waiting room she was triaged within five minutes and was admitted almost immediately. The care and attention that she received during the next few hours was of an exceptionally high standard, and was in contrast to previously heard stories about this particular department.

Despite being overcrowded with patients on trollies, there was one cubicle that was constantly kept empty during the night. Trollies were moved about by the staff with the dexterity of chess pieces as doctors came and consulted with, and diagnosed their patients. Each patient was wheeled into this empty cubicle in order to have complete privacy as doctors examined them. When the consultation was over, they were wheeled back out again leaving the cubicle ready for the next patient.

All this movement/ shifting/ wheeling/ tugging/pushing was carried out by the staff with constant cheerfulness and maximum efficiency. My mother was wheeled into that cubicle three times during the hours that we were there before she was eventually transferred to a ward. Being the beneficiaries of such a high level of privacy and dignity in the middle of a hustling busy A & E dept. was so welcome and so totally unexpected given the horrific experiences of other patients that are constantly referred to by the media. The current health service is hugely criticised most of the time- but my mother’s recent experience was one to be highly commended.

The unit that she is still on is staffed by dedicated people who look after her with diligent care, kindness and professionalism. Her every need is catered for and we are so lucky that her care team are so thorough in their work and expertise.

Since she was diagnosed with terminal cancer last year, the care and attention that my mother has received from the medical staff in St James Hospital has been nothing short of excellent. Her treatments and appointments run like clockwork, and she has always been present at the heart of every consultation and meeting about her illness.

Kindness, affection and good humour are the added bonuses that the staff provide, and my mother and the rest of my family are so grateful that she is being looked after with such compassion, thoughtfulness and consideration.

I have nothing but praise for all the health care professionals that surround us at the moment as my mother struggles to remain upbeat and as well as she can be given her fragile state. I have no doubt that while the Health Service in general is struggling and needs reform, St James Hospital as a centre of excellence is currently demonstrating how best practice can actually work as my mother and consequently the rest of our family are the recipients of this care.

Destiny can lie in the hands and hearts of unexpected people who come into our lives when they are needed the most.

Living life facing death…

Mam, me and Bernie my mother in law. 2010

Mortality or death is something that surrounds us every day. We are faced by the brutality and sadness of it in every news bulletin and newspaper that we read, and although it is a part of our daily lives, it is usually about someone that we don’t know. Someone distant who we might think about fleetingly but are not connected to. We may feel momentarily sad for their circumstances and for the people who might mourn their loss, but really their deaths don’t touch us, as it is about someone else- someone unknown to us.

Facing death with someone you love is altogether different.

Ultimately we all know that we will die, but while we are young we manage to put that notion of death on the long finger. The Grim Reaper is not for us! Most of us imagine that we will grow old and die a peaceful death (if and ever we have a moment in our busy lives to even contemplate it).

The reality of living with mortality is heavy and dark, and I believe that we never really consider it until we are faced with losing someone we love or have actually lost.

Coming to terms with a life threatening terminal illness is an indicator of how powerless we really are as humans in the face of disease. We may have the will to live, but “fate “can decide otherwise.

I am currently facing uncharted territory with two special wonderful much loved women, my mother and my mother in law. My mother is 82 and has terminal breast cancer, and my mother in law who is 93, is in the early stages of Alzheimer’s .

Watching these two wonderful women cope with their disease’s while hoping for a positive outcome humbles me as I realise that they do not want to die. They struggle every day to hang onto life despite their pain and suffering.

They are on their own particular course and I am on mine. They will ultimately die, and in time they will be gone. I will have to cope and get on with living although my heart and life will be bereft without them.

This is my tough future.

Loosing someone that you love unexpectedly is horrendous as you have no warning –like the sudden death of my darling younger sister Annie, but loosing people that you love dearly day by day, little by little is tougher still.

Having to be emotionally strong and to pretend that somehow death is within our control is exhausting, and providing reassurance knowing what the eventual outcome will be, is heart breaking at this moment in time.

Cliché’s about ‘living life in the moment so that you will not feel regret in the future’ are easily spoken or read. They are harder to live by when time is taken up by the day to day management of hospital appointments, shopping, meal making and other mundane repetitive household chores that have to be completed.

None of these things really matter in the grand scheme of things, and although it keeps a semblance of order in the minutes, in the hours, in the days, in the weeks that go by, it is all meaningless in the context of what lies ahead.

At the funeral, will people remember that the house was clean and that the dusting was done? Will it be noted that the carpets were vacuumed and that the kitchen towels were matched?

I don’t care about this and I am sure that the people who will come to mourn with me in the future do not care either. In the time that is left I want to tell these lovely women to forget about the house work and all of the stupid household tasks that are rendered useless and meaningless in the face of death.

I want them to embrace sunshine as the day dawns, and to smell the sweetness of summer flowers. I want them to rejoice in the simplicity of living and to enjoy if they can, the wonder of a star filled night. I want them to enjoy ice cream dribbling down their fingers as they try to catch the last bit, and to do all the things that are possible in the time that they have left. These are the things that I think are important, but I realise that what I want may not be a part of their thinking as they struggle towards an unknown future.

Living with their uncertainty has changed my own perspective on life, and the clichés about living in the moment have never held more resonance than they do now.

Living life and facing death is not just my destiny, it is universal to us all.