Category Archives: Loss

Living with Epilepsy…..

My son has Epilepsy. This is not the sum of all parts that make him as a person, but it is a huge factor in his life. He grew up healthy and happy, but he suffered a head trauma 10 years ago when he was a trainee Guard at 19 years of age. He banged his baby soft skull against a concrete wall when playing a joke on a colleague which resulted in a major seizure within 24 hours. The precious safety cap that surrounded his brain was chipped and damaged that day and can never be repaired.
 
This major brain injury has impacted in so many ways on my family that can often be inarticulate and without expression, but it has affected my darling son in ways that I am sometimes emotionally inept at dealing with.
 
He has had much more to deal with than I have.
 
His promising career with the Irish Police Force ended when another seizure occurred almost twelve months later. The Guards ‘let him go’. Epilepsy is a condition that prohibits so many life and career choices, and being a member of the police force was one of them.
 
He took all of this in his stride, and despite the desperate fallout, he took a side wards step to fulfill his ambition of working with marginalised youths and went to college and is now doing all that he ever wanted to do. He works full time with disadvantaged and vulnerable young people and he is dedicated to his profession and is well loved and respected by his peers. He is also a volunteer in the local football club and gives so much of his free time in the endless pursuit of community building through sport with young people.
 
He is on prescribed epilepsy medication for life and it keeps him safe (most of the time) but he has had infrequent seizures since.
He is my precious child and I adore him.
 

I admire his refusal to be categorised by his Epilepsy although the mammy in me wants to protect him and keep him in bubble wrap.
I admire his dedication in trying to make life better for other people, but I get frustrated when he puts his own health on the back burner and doesn’t place himself first.
I admire the way that he will not let this condition rule his life as he gets on with it.

But….

I wish I could wave a magic wand and go back to that day and put a pillow on that concrete wall.
I wish that he didn’t have to hide this terrible stigma that he carries 24/7
I wish that Epilepsy was understood and talked about more.
I love him for all the parts that he is and I wish that life didn’t deal him such a shitty hand of cards.

Destiny is not all that and a bag o’ chips sometimes…..

The flip side of the coin…

“Choose life. Choose a job. Choose a career. Choose a family”. The opening words of the iconic monologue from the 1996 movie ‘Trainspotting’.

But what choices do we really have when it comes to living?

I believe that life can be a series of accidents and opportunities that are constantly dependent on outside factors that we have absolutely no control over at all.

Take that great job interview that you recently did. You know that you ticked all the boxes. You know that you are qualified for the job. You have the expertise. You presented well on the day and you answered all the questions correctly.

You didn’t get the job.

Outside influences may have played a major part. The Interviewer may not have liked the colour of your hair, or she may have had her best friend’s daughter interviewing later that day. You will never know the reason.

You will go over and over what it was that you did wrong, and never find the answer because it was nothing to do with you, it was to do with someone else making a decision that might affect the rest of your life.

You had decided on a particular path assured in the belief that if you completed A you would progress to B and then on to C. Mapping out our lives is something that we all do. We have goals and aspirations to aim for, and we hope that they will be realised as we all work toward personal fulfilment.

Achievements are celebrated and greater goals are set as we attempt to pilot our way through our lives, providing for our families, setting example by our standards and generally expecting that things will work out the way we want them to because we have worked so hard to make it happen. It’s what we have been taught to do. I cannot visualise my world without order, hope, expectations and dreams.

But life is actually so arbitrary. I realise this now, and it has taken me so long to understand it.

I realise that no matter how qualified I am for a particular job, it’s someone else’s decision as to whether I get it or not.

I realise that being an obedient citizen guarantees me nothing.

I realise that actions and decisions take place that impact on my life all the time and that I have no hand in them.

I realise that most of life is chaotic and unplanned, despite our belief that there is an order to the events that affect us.

I realise that no matter how much I try to protect the people that I love, I cannot keep them safe from harm.

I realise that I have to let go my feelings of desolation because life didn’t work out quite as I had planned it would.

I realise that life can be explained by the simple metaphor of a coin toss.

Heads you live – Tails….

Destiny can just be about flipping the coin of life and accepting where it lands.

At the end of the day………

It’s such a commonly used expression –

Irish people use it all the time. We throw it around casually in conversations….. “At the end of the day she was acting the maggot and I will NEVER be friends with her again”… “At the end of the day the score was even and the ref was SOOOO right”. “At the end of the day he was such a fecker that I dumped him”.

“At the end of the day” is a colloquialism- a part of the popular Irish vernacular, and although a lot of people use it frequently in conversation, I don’t honestly believe that we think too much about what lies behind the words that we are saying.

Circumstances have a way of making you sit up and take notice of what was once ordinary become extraordinary…….

At the end of the day on Wednesday I learnt that my mother’s terminal cancer had spread to other organs in her body…

At the end of the day I realised that her treatment had not halted this terrible disease despite medical interventions and chemotherapy….

At the end of the day I was alone with her as we were told that the results of her recent scans did not herald good news…..

At the end of the day we were sitting together quietly in a hospital room hearing words that extinguished all hope….

At the end of the day I was sitting with my mother the moment that we realised that the actual end of the day was coming sooner than we thought….

 

I am currently confused about the meaning of Destiny…..

Missing someone….

Missing you is not something that I think about every minute of every day.
Missing you is something different.
Missing you is not hearing your voice and laughter.
Missing you is not smelling your special sweet smell.
Missing you is not having you to hug and listen to.
Missing you is looking at your children and seeing your lovely features in them.
Missing you is our stories and history unfinished.
Missing you is my present and future without you.
Missing you is like missing the other half of me.

Missing you is simply always missing you.

Are virtual Internet friends real?

Growing up in the 70’s all of my friends were people that I knew intimately. That’s what the word ‘friend’ meant to me. This ideal remained unchanged throughout most of my life and the people that I called friends were physical people that I knew and socialised with.

Meeting new people who have shared interests and that you ‘click’ with has always been difficult for me. I have been bored many times by friends of friends on nights out who prattled on about stuff that didn’t engage me, and then again there have been spectacular conversations with casual strangers who have been on the periphery of the company that I was with on particular nights. I often wished that I was brave enough to ask some of these people to meet up with me again so that we could continue the conversations and discussions another time long after the night was over. My own insecurities gagged and stopped me. Half of the time it was probably just as well. Morning sobriety has its own way of negating the previous night’s ‘stimulating conversation’.

Meeting people that we are compatible with is so hit and miss and random. It seems to be reflected in the proliferation of ‘Date/Mate sites’ that are all over the Internet, attempting to match people with similar interests together. In the past ten years because of the Internet and on line social media, the idea of ‘friends’ has become much more complex in one way and yet more fluid in another.

There are places on the Internet where people who have shared interests can gather, relate and chat. This can be a cyber/virtual place where your actual global location has no bearing or relevance to the conversation or interaction that is taking place. I adore this relatively new medium.

As an avid Scrabble player I have discovered and found new friends with common interests on the World Wide Web. I have played games with people who drift in and out of my life and disappear, and I have also made friends with others who I play with regularly and who I have conversations with about stuff that is personal and relevant to our lives. Although I may not recognise them if I met them on a street like I did growing up, some of these people have become very dear to me and are as important to me as the friends that I see on a regular basis in my daily life in Dublin.

I have been an enthusiastic user of the Internet since its origins and I believe that I can distinguish the good and the bad that lies at the heart of it. One of my first online cyber conversations was with a widow called Sally who hailed from Kansas and whose local Council had bought computers for all the far flung people in her locality so that they could chat and keep in touch with each other. They had also provided lessons for these neighbours on how to use the computers that were a life line to this scattered community. She was 76 years of age and was so thrilled to be type chatting (slowly) online with someone from Ireland. She had always wanted to visit, but sadly never got to make that journey. We stayed in touch for years. We had a lot in common as women and we never ran out of conservation when we were on line. We gossiped like old pals with shared history, and I got to know her and her family through our many chats.

The internet has opened up new ways of making friends for me. I have ‘met’ delightful people throughout the world, and I have had the most wonderful stimulating and complex conversations that would not have been possible without this medium. It has illuminated me on subjects, locations and histories that I lacked understanding of, but that have come alive and understood through the conversations that I have had with ‘virtual friends’. This has added a richness, colour and diversity to my life in ways that I simply cannot articulate.

This week I am welcoming a ‘virtual friend’ to my home for a visit. We have been friends for about five years. We have shared life’s ups and downs on line in the same way that I have shared the same events with my physical friends here in Ireland. We have laughed and cried about events that have shaped our individual lives although we have been thousands of miles apart when these events took place.

We started out playing Scrabble, and then we graduated to Facebook and regular on line chats. This weekend we will finally meet face to face. I am so looking forward to hugging her and welcoming her into my home as I do all my friends.
Without the Internet we would never have become pals. Without the Internet I would not have the relationships that I have with many people stretched across the globe.

Growing up in Dublin I had friends that I recognised by their faces, but this has changed. My many online friends may not be facially recognisable to me, but they are part of a global network that is as meaningful and relevant to me as are the people that I interact with physically on a day to day basis.

Friends are people who understand and love you regardless of where you are in the world.

Destiny can be about making real friends in the most unexpected places….

Friendship.

My close friends are jewels, full of colour, joy and happiness. They are like emeralds, rubies, sapphires and diamonds. Precious gems that cascade through my life with a brilliance, beauty and special individual quality that makes each and every one of them exceptional. They are like a treasure trove that lift me up and add sparkle when I need it, and I am never disappointed by the quality that they bring to my life.

Destiny can be like being a pirate and finding that special pearl.

What a difference a year makes……..

It is a year (approx.) since my two adult children left home.
One year- 12 months- 52 weeks- 365 days- 8,670 hours – 525,600 minutes.

Time has unglued us from being one complete unit into becoming separate people living apart. This has led to many changes in our individual lives.

Learning to live without the constant ebb and flow of my children coming and going has been difficult. It has brought a new quieter rhythm to the house and one that has not always been welcome. I miss the noise although I appreciate the quiet. I miss the mess although I love the tidiness. I miss the gangs of pals although I relish the choice of seats in the sitting room in the evenings. I miss their late nights out although I realise that I can relax and sleep soundly and not have to wait to hear a key in the door. I miss waking up during the night although I don’t worry now if the house is in darkness as I realise that I turned the last light out and there is no one else coming home.

This is the melancholy side of things….
On the flip side there is a whole new order.

Being able to come and go without having to be there for formal meals is a huge freedom. Our family tradition had us all at the dinner table every night at a particular time having dinner and discussing the daily national and political news. While I always loved that part of the day, it is far less interesting when there are only two voices in the foray. It can descend into a major disagreement in no time.

My dinner time routine has changed.

Sometimes my hubby and I don’t even have dinner! We have the freedom to up and go to mountains, lakes and seaside destinations and we do so regularly. We go to restaurants, pack picnics and are generally less rigid in our evening routine than we have been in the past. We absolutely love this new independence although I am usually the driver of moving beyond the kitchen table.

I particularly love weekends. I am a volunteer with a national charity and my chosen slot is an early shift in Dublin City Centre on Sunday mornings. I finish around midday and my hubby usually collects me afterwards and we take this opportunity to make the most of the day and to enjoy the freedom of not having to be home for dinner. We go wherever the fancy takes us, and we stay out as late as we like. We have no one to please except each other and this adds a fun element and unpredictability to our lives. We are learning how to be a couple again after being parents for such a long time.

Our children still live close by and are welcome visitors all the time. They pop in unexpectedly for chats and impromptu meals that are conjured up in minutes by their Dad. They also come by for more formal ‘invited‘ dinners where the traditions are observed and the topical arguments continue. These dinners are special and very precious. Time tick tocks in the background as our lives move on independently but with habits and rhythms that bind us to each other.

I arranged to meet my daughter today and we spent two leisurely hours bantering and chatting over a delicious lunch in a local restaurant. If she was still living at home I don’t think that this coming together would have held the anticipation and ultimate pleasure of her company that I enjoyed for that short space of time.

Who knew what changes a year would bring.

Destiny can be about rearranging the jigsaw of life and seeing a different picture.